I have had an innate fear of needles, hospitals and everything related to them for as long as I can remember. Over the last couple of years, whenever I have had to give blood (for general tests or as a donor), I have either been hysterical or faint-headed. Frankly, I don’t know why this happens. I’m very strong willed and don’t let anything faze me ever. I’m extremely composed when I am in charge of taking care of someone else in a hospital, but when the spotlight is on me, I become a baby (the annoying, crying, bawling kind).
Why am I talking about all this? Because I recently signed up to be a bone marrow donor. Me. The one who is afraid of needles. The one who will probably faint half-way through. But why have I signed up for this if I’m so afraid? The reasons are too many, while my fears are few and unfounded. Based on my research and understanding on being a bone marrow donor, I thought I would put together a little FAQ style post to spread awareness + help others like me reach the decision to play a part in the process of saving someone else’s life. It’s such a simple, humbling experience, yet not enough people do it.
So heres hoping this will help someone.
What got me to sign up as a donor?
I recently came across a social media campaign to find a bone marrow donor for Amit Gupta. Amit, who was recently diagnosed with acute leukemia, is well loved in the NYC start-up and tech scene, which is evident from the outpouring of support and love from everyone related to technology. Startups like Postagram and highly influential pundits like Seth Godin are doing their part in helping Amit find a donor.
There are 10 million donors registered with the National Bone Marrow registry, but only 1% of those are South Asians, so there is a 1 in 20,000 chance of Amit finding a donor. The odds are really stacked up high against South Asians. Amit is probably luckier than most other people in his situation, he is well know in the tech community and has the kind of support that few (south asian) people with acute leukemia can hope for. As an example, Sameer Reddy, an 8 year old, who has battled acute leukemia for about 5 years and has just relapsed & needs a donor - read his story here.
I want to, in my little way, better the chances that someone as brilliant as Amit & someone as young as Sameer will live longer. So I signed up and am currently waiting for my swab kit to arrive (more on the kit later).
How do I sign up?
It is super simple. Go to the National Bone Marrow Donor Registry website and sign up. Signing up is a quick process, about 5 – 10 minutes. You will be asked various questions about your general health and prior health problems. Everything is super simple. Once you sign up, you will be sent a swab kit, which will arrive at the address provided by you during signup within 1 – 2 weeks. Alternatively, you can do all this at a bone marrow donor drive, this will cut down on the waiting time for receiving your swab kit. You can also fill out the donor form offline and mail it to the registry. The form will look like this.
What do I do once I receive the Swab Kit?
Just follow the instructions on the kit. There will be four tagged swabs, which you need to brush against your inner cheek (top right, top left, bottom right, bottom left). That’s all. Once you are done, mail the kit back to the address provided. If you are match, you will be contacted and taken through the process of donation (but only after you consent to donate).
Isn’t bone marrow donation a very very painful process?
That’s a very valid question. In fact, that was what I had thought too. I was under the impression that if I was a match I would have to go through painful surgery which would keep me out of normal functioning for a few weeks. Boy, was I wrong. It is a super simple process -
1) In most cases, bone marrow donation is similar to blood donation. Blood is drawn from one arm and sent through a machine which separates the blood cells required for transplant and the remaining blood is returned through the other arm. This process is called Peripheral blood cell (PBSC) donation.
2) In some cases, a surgical process might be needed in which liquid marrow is withdrawn from the back of the donor’s pelvic bones using special, hollow needles. General or regional anesthesia is always used for this procedure, so donors feel no needle injections and no pain during marrow donation. Most donors feel some pain in their lower back for a few days afterwards, but can get back to regular work within a day or two. [this option scares me a bit, it's ok to be scared. But remember, you are saving someone else's life, by bearing some slight discomfort for a couple of days, we can do that much, right?]
And finally,
I am lucky for who I am, for what I have and for my good health. And I will be lucky if I am a match and will have a little part in the process of helping someone live a life they thought they had almost lost.
Answers to a lot more questions can be found here.